EB (Epstein-Barr virus) is considered one of the most painful diseases in the world. The victim's body is as fragile as the wings of a butterfly. Any friction, tear, or even a hug from the mother can lead to the painful injury. This disease is extremely rare, the incidence of about one in 20,000, most of patients are genetically inherited.
The film focuses on a number of different sex, different age of EB patients and their families in Shanghai, Nantong, Xiamen, Qingdao and other places. Adopting the way of social - panorama and individual - macro intersective filming perspective, we deelpy recorded how did these butterfly children confront the challenge of survival, the plight of the reality, as well as how strive for and struggle for the the entanglement of this lifetime diseases.